Hey Crystal, I have loved you since I first heard you sing, showed your uniqueness, (is that a word?) AND then found out you were a Type 1!! It’s kind of like meeting someone that grew up in the same town, or was also addicted to video games the second they played PacMan…a kindred spirit of sorts.  It is because of our common health issue, that I write. I was diagnosed shortly before I turned 13. I went through the Fall and early Winter of 1982/83 feeling deathly ill and undiagnosed. Long story short, because of the delay, ( I am very brittle diabetic and have both hypoglycemic and hyperglycemic unawareness)and the very stubborn, (a true Taurean) independent, and fun loving chick that I was, (I grew up in Santa Cruz, CA….we have an awesome downtown and boardwalk)I did not take care of my diabetes. I actually acted like I wasn’t a diabetic. Now, almost 30 since I was diagnosed…and the many years of weird complications, beating the odds and dodging bullets no one thought I could…I am finally on the fast track to having my ashes spread in the four directions. I am going to die. I have been told by two of my expert doctors that “I am at the end of my road”. UCLA Medical Center and Scripps Green Hospital in La Jolla, CA are both confirming, testing, conducting medical trials, and conducting multiple conference calls a month to try and prolong the life that I have. I need a living kidney donor in order to stay around to see my son son graduate from college, maybe even see him get married and give me a grandchild or two. Oh, in addition to everything, I was diagnosed with a genetic heart disease after fainting and coming to in a pool of blood in 1993. I had cracked my head open on the edge of the door jam…losing a third of my blood volume. I wasn’t getting enough oxygenated blood to my brain. I now have a pacemaker and in 2008, I had a kidney transplant after being on dialysis for eight years. However, that perfect match kidney from Colorado was on a downward spiral the second I started all the immunosupressive drugs…namely prograf. A side effect of the prograf…in rare cases, is a condition called HUS or Hemolytic Uremic Syndrome and it slowly causes problems for the transplanted kidney. Anyway, I am kind of back where I started, without the time to wait the 5-8 years on a five state region cadaver list. I have developed a severe chronic low blood pressure…causing me to faint and/or have mini seizures. I have been as low as 51/26, with very few symptoms. I am also back on dialysis. Oh, I also have the scarring form of alopecia. I have lost a good 80% of my hair in the last two months and it can cause lesions on my bald scalp.

And siogren’s syndrome is also recent development…not fun at all. I am not asking for anything, but for a few words here and there raising the awareness and need for living organ donors. Out of the roughly 100,000 people on a cadaver list, nearly 50% of them will die while waiting. The demand greatly outweighs the supply. As hard as it is for parents to think about after they have lost their child, with most organs, only a child can give to another child. I am in this boat because I would go six months to a year, without checking my sugar. I never had a diet high in empty carbs…both my mother and I like to garden and ate hardly any meat. Way back then, no one had figured out that diabetic exchange diet was practically fiction. So, I would eat beans, bulgar wheat, quinoa, rice, potatoes and granola and would nothing of it…I mean they weren’t the now forbidden sweets, cakes and pies! Needless to say,  I thought I was eating well enough. This continued as did the hospitalizations until after two years of marriage and two miscarriages, (one at six weeks, the other at five months). The urgent care doctor told me that if I EVER wanted a child, I would never be healthier then right now. I was a perfect pregnant woman, doing everything and anything I could to keep my baby safe and me healthy. The years that followed, I would slip up here and there. However, in 1996 after my hysterectomy and with Army health insurance…I got on the pump and have been pretty well. But all those years of ignoring my diabetes…like the elephant in the room, took a tremendous toll on my body and there is no one to blame but myself. I no longer have the strength to keep up with my photography, gardening, or cooking, only enough to go from chair to couch to bed…and repeat. Crystal, I want to do those things again…I want to live.

Please continue to use your beautiful voice not only to sing, but to spread the word to encourage living donation for me, for a friend, for anyone. Speak especially to the young kids and teen diabetics. Crap, use me as the ‘this is what happens when you don’t take of yourself’ example. lol We are a small select little group, we have to stay connected. I will leave some information here and you can help take it from there. I was also home schooled, which was fine with me…I hung around adults anyway. So, I never felt like I was missing out on anything.

With all the positive energy I can muster, thank you and the best of wishes to you and yours.  ~Tess
For anyone interested in donating to me, please contact Scripps in San Diego, CA.
At 1.858.554.4310 and ask April that you would like to speak with the transplant coordinator for Theresa Anderson and she will get you to the right person.
For a general interest, I would suggest making a call to the closest hospital near you that does transplants, and ask to speak with a coordinator for kidney transplant. Most hospitals have websites that offer a lot of information…google them.
Thank you to anyone that reads through my posts and thinks about donating or knows of someone that knows someone.
~Tess

Crystal,
We were in the audience at Bill Cody’s AM radio show Friday AM Oct. 8.  It was our first time hearing you and we were indeed impressed by your talent and great personality.  You will continue to go far and we feel blessed to be able to say we heard you perform.  Keep persuing your great dream!

BEV & CLIFF

PS we were in the front row of the morning broadcast.  did have my picture taken with you!!!

Ever since I heard you on American Idol, I just thought you were so Awesome; original, and just a Blessed Talent!:)

hi Crystal,
  my wife and I think you are a fantastic singer. didn’t know about your health. we will be praying for you and the many people that does have this life threatening disease.keep up the good work. love to hear more of you in the future.
      sincerely,
      James

Was interested in finding out if you were related to Braize and Margaret Bowersox.  They were our pastors at my church many years ago when I was a teenager.  I had not heard that name since then.  I believe they were originally from Ohio.  They were very special people to me.  Hope your career continues to go well.

Crystal, I was diagnosed with Type 1 diabetes when I was four, and now I have been diagnosed with celiac disease, you are an isoiration and I would love to do a duet with you to raise money for type 1 diabetes.  I am 10 years old and loved you on idol.  I am using my dads email.  Hope to hear from you soon.  It would be great.

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